I promised I would tell you guys about my daughters condition. I suppose now is as good a time as any.
She has suffered two heart failures in the last two years. She is just three years old. She is being seen at Seattle Children’s Hospital which is one of the top hospitals in the country. Which means its one of the best hospitals in the world. The doctors here presented us with the opportunity to put her on the list for a heart transplant. After weighing the pros and cons, we decided this would give her the most autonomy as she grows up. And you know me, I’m all about freedom and autonomy.
There are many challenges that come with being displaced from your home and living in the hospital. But Seattle Childrens does a great job of taking your mind off of things. They have tv, movies, video games, free WiFi, free coffee, free laundromat, free shampoo and soap..and more. They even have a volunteer that gives parents of inpatients free massages! Of course these things aren’t actually free, they are just free to the parents. They were paid for by donors. As you enter the hospital there is a wall with pebbles that represent donors of $100,000 or more. There are a couple walls full of pebbles. To these people, I say thank you.
We have been on the waiting list for two months. She is a “1A” which means she is at the top of the list. Her condition is so bad that she requires a particular drug that will kill you if you quit it cold turkey and a breathing machine. She is awake, but if she gets any worse they will intubate her and have the machine actually breath for her completely. She will have to be anesthetized for the remainder of wait if it comes to that. Long story short, she’s in a bad way.
Miraculously, Her, myself and the rest of my family are in great spirits. We have found unity and purpose in the face of adversity. Nothing is relative to us. Our perspectives are purely instinctual or perhaps its just pure love. Love for each other and being together. Nothing is relative. Anyone who espouses that philosophy is retarded. Not a dig, there is something genuinely wrong with them. I know this mainly due to the fact that they continue to live. Even by breathing they contradict their entire philosophy.
I think back to just 100 years ago and compare my situation to theirs. Hell, even just 30 years ago, my daughter would not be alive. The technology wasn’t there and the medicines they use weren’t there. I praise the creator, (whoever it may be) that I get to continue enjoying this feeble existence with my daughter.
Tangent* Speaking of feeble existences, I have so many business ideas that I cant wait to try out. Why I am feeling extra-entrepreneurial, I do not know. One of them involves petitioning the local government to change some business regulations. I look forward to putting out a series chronicling that.
Interestingly, there are not that many helpful resources online for my situation. At least not ones easily found. I think ill make a website with instructional videos and updates on the experience of living in a hospital long-term. I do not know what people will get out of me sharing the experience unless they are going through the same thing, but at the very least it could serve as a meditation for myself. I would try and add comedy to it, but comedy is extremely hard for a sociopath.
Hey guys, here is that website I said I was going to make. http://Www.iheartzuri.com check it out and tell me what you think. It’s still a work in progress but I think it is worth checking out at least once. For quick updates and notifications of videos and blogs being posted follow the insta: @_iheartzuri
Thanks a lot fellas.